TBRS Community

TBRS Community has been a member of Linktree for 2 years and joined in April 2024. Resources tbrscommunity.info has populated their site with include: • Interactive Gene Variants Map • Child Neurology Foundation - Roadmap To Resources Guide Book • Host a Community Fundraiser • Tatton Brown Rahman Syndrome Community Store | Bonfire • Looking for support beyond what the TBRS Community provides? • The TBRS Community Runs South London • Participate in the Patient Registry • Count Me In for TBRS! • Donate • Become a TBRS GEM • Join the Dorothy G. Hatton Legacy Society • TBRS Community Store • Join TBRS Family Connect • Private Facebook Group (For patients, friends, family, and researchers) • Join the TBRS Research Hub • Public Facebook Group • YouTube • Instagram • Empowering Families. Advancing Research. Building Community. • TBRS Fact Sheet • TBRS Surveillance Guidelines • Overgrowth Syndromes Alliance • TBRS Community 2025 Annual Report • TBRS Community News • Meet Ari - Your new teammate in TBRS care • Twitter / X • 2026 TBRS Summit Registration • Participate in the TBRS Natural History Study at WashU • Start Genetic | Genetic Testing • “Two Rare Diagnoses, One Common Lesson: Start with Genetic Testing” • Upcoming Family Fundraisers Supporting the TBRS Community • Advancements in Immunology Research and Remembering Dr. Dan Kennedy II • TBRS Patient Priorities and PRISM Roadmap Workshop